Well, we've made it two years with dealing with NEHI. These pictures were taken when Tessa was finally diagnosed by Dr. Houin in Tampa in September 2014 (she was 10 months old). She had a high resolution CT scan that showed ground glass opacities in her lungs that present Neuroendocrine Cell Hyperplasia of Infancy. It was a really rough 1st year, but since then she has made so many strides and taken all of these issues without a complaint (although she doesn't know any differently).
She is still our happy little girl all the time.
When we got home and was put on oxygen, we had to learn how to deal with the tube and tank, which seemed monumental at the time. But now she only needs it when she's sleeping so it makes everything so much easier.
And nothing gets her down!
Read more about NEHI here:
http://www.child-foundation.com/what-is-child/types-of-child/neuroendocrine-hyperplasia-of-infancy/
It's a Children's Interstitial Lung Disease or ChILD. Research is still ongoing to determine what the cause is and whether there is a cure. She'll always have this, but overtime her lungs will grow healthy tissue and make her stronger and stronger. If you have any questions, please ask us, we always like to talk about it and spread the information around.
And here she is now at 2 years and 5 months.
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